Update on Kendall

Kendall has turned into a very happy smiley baby! She gives daddy the biggest smiles and it melts his heart! We did an at-home sleep study about 2 weeks ago and the results came back still showing that she has minor desaturation episodes. So, we were referred up to Riley's Children Hospital Pulmonary specialists to further test/evaluate her condition. The doctor that we saw there on Wed 6/19 said that Kendall's desaturations are very minor and that she is comfortable with us taking Kendall off of her oxygen and apnea monitor during the day when she is awake and we are with her and able to observe her. We need to continue to use oxygen and the monitor when she naps and during the nighttime. I had to bring her back to the hospital today so that they could perform a sleep study in their sleep lab. She did a 3 hour "nap study" and actually slept the entire time! This sleep study will help them better determine why she continues to have desaturation episodes (reflux, "floppy airway", etc). We should get the results in 5 - 10 days. We'll keep you posted!